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Patient Support Is Now a Matter of Survival: Reflections from Asembia 2025
I just returned from Asembia 2025, the largest gathering of pharma market access, commercialization, and patient services professionals in the U.S.
From Foundational to Elite: The Complete Series
Supporting patients with rare diseases requires more than traditional service models. It demands a deeper understanding of their unique journeys, emotional ...
From Foundational to Elite: Closing the Loop: Building A Rare Disease Patient Support Feedback System
Over the last four posts, we’ve walked through a maturity model for patient experience measurement in rare disease patient support programs — from foundational ...
From Foundational to Elite: From Surveys to Signals: Mining Unsolicited Feedback in Rare Disease Support
By the time you’ve built a foundation of annual surveys, layered in onboarding and adherence check-ins, and started closing the loop — your rare disease ...
From Foundational to Elite: Turning Feedback into Flow: The Advanced Layer of Rare Disease Patient Support
Once your rare disease support program has the basics in place — annual relationship survey and post-call feedback — the next step is shifting from periodic ...